June 01, 2018 11:12 PM
(ABC 6 News) -- There are 3,000 extra people in Rochester this weekend for the state DFL Convention. Half of those are delegates.
One of those delegates is Justin Smith, a public speaker, blogger and disability rights advocate. He's only 19 years old, and he's already become a leader for people with disabilities.
“It is important for me to make my voice heard, and show up and to be an advocate for the change. That's why I am a delegate,” Justin said. “It's important that people with disabilities are included in meaningful ways. That includes being involved in the political process.”
Justin lives with Athetoid Cerebral Palsy. He uses a communication device to talk, and that device, as well as his power chair, comes at a cost, which is why he's advocating for support, to make sure anyone who needs technology and care- gets it.
“He's able to share his unique perspective on how we can all make this work better. He needs support and full-time staff and health care and special equipment, accessible technology. Technology is key for this kid. It's his independence,” said Kris Schulze, Justin’s mom.
“There have been real threats to medical assistance and health care which mean very real threats to people with disabilities. We need more options for self-determination. I want to live with as much choice and independence as possible. Isn't that what anyone would want?” Justin explained.
Justin says one in five people in America have a disability and one in four 20 year olds will have a disability before they retire.
“I am terrified that many of us with disabilities who need Medicaid will lose our freedom to choose how to live our lives. This support matters. It helps me make an impact on the world,” Justin said.
Updated: June 01, 2018 11:12 PM
Created: June 01, 2018 11:12 PM
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